From roxxie@news.delphi.com Sun Aug 7 09:52:35 1994 Date: Sun, 7 Aug 1994 03:54:31 GMT From: "ROXXIE@DELPHI.COM" Reply to: ROXXIE@delphi.com To: london@sunsite.unc.edu Subject: Asthma REading and Resource List >Path: news.delphi.com!news.delphi.com!not-for-mail >From: roxxie@news.delphi.com (ROXXIE@DELPHI.COM) >Newsgroups: alt.support.asthma,alt.med.allergy,sci.med >Subject: Updated: alt.support.asthma READING/RESOURCE LIST >Date: 7 Aug 1994 02:30:47 -0000 >Organization: Delphi Internet Services Corporation >Lines: 675 >Message-ID: <321h0n$c69@news.delphi.com> >NNTP-Posting-Host: news.delphi.com >Keywords: asthma information >Xref: news.delphi.com alt.support.asthma:822 alt.med.allergy:702 sci.med:61568 ****************************************************************** THE ALT.SUPPORT.ASTHMA READING AND RESOURCE LIST, Version 2.0 (Revised August 6, 1994) * denotes changes/additions since last edition This list was developed and is maintained by Lynn Short (roxxie@delphi.com) The following contributors are gratefully acknowledged: wrean@caltech.edu (Patricia Wrean) london@SunSITE.Unc.EDU (Larry London) tbrookes@moose.uvm.edu (Tim Brookes) PLEASE NOTE: This list is designed to aid those who live with asthma by offering what is hoped will become a comprehensive list of reading material and resources available for people with breathing problems. It is a 'work in progress' compiled by contributors. It is recommended that you check for new editions regularly so you have access to the latest information. It is NOT an endorsement of any information or claims made in any of the books, magazines, articles; or of any product, company or other resource listed. Prices listed here are subject to change at any time without notice. The listkeeper will make every effort to update prices and other information whenever she becomes aware of changes. It is also NOT a substitute for actually seeing and following the advice outlined by a competent medical professional. __________________________________________________________________ * Book reviews and/or comments about books found on this list, * and books that you would like to see added to this list are * welcomed. Please send them to roxxie@delphi.com . BOOKS (listed alphabetically by title): _A Parent's Guide to Allergies and Asthma_ by Marion Steinmann _Allergies: The Complete Guide to Diagnosis, Treatment, and Daily Management_ by Stuart H. Young, M.D., Bruce S. Dobozin, M.D., Margaret Miner and the editors of Consumer Reports Books, 1991 _Allergy Environment Guidebook: New Hope & Help for Living & Working Allergy-Free_ by Judy Bachman, 1990 * _Allergy Plants That Cause Sneezing and Wheezing_ * by Mary Jelks, M.D. _Asthma and Exercise_ by Nancy Hogshead and Gerals S. Couzens _Asthma Resource Directory_ by Carol Rudoff * _Asthma - The Complete Guide to Self-Management of Asthma and * Allergies for Patients and their Families_, * by Allan M. Weinstein, M.D., * published by Fawcett Crest, NY, USA, 1987. * ISBN 0-449-21562-8 * The author is Assistant Clinical Professor of Medicine at * Georgetown University, and is a board-certified allergist * who practices in Washington, D.C. * This is a great book covering all aspects of current * treatment of asthma in easy to read and understandable * language without being simplistic. * _Asthma - Stop Suffering, Start Living_, * by M. Eric Gershwin, M.D. and E.L. Klingelhofer, Ph.D. * published by Addison-Wesley, USA, 1986. * ISBN 0-201-11581-6 * The author is Chief of Allergy and Immunology, University * of California, Davis, Medical School. He is board-certified * in internal medicine, allergy, and clinical immunology. * It has good appendices of organizations, asthma camps for * children, allergy centers, long term facilities, and is * quite readable, but doesn't go into much detail about the * biology of asthma and what medications actually *do*. * _Catching My Breath_ * Tim Brookes, 1993 * (tbrookes@moose.uvm.edu) * _Children With Asthma: a Manual for Parents__ * by Thomas Plaut, 1988 * published by Pedipress, Inc. * This book is filled with practical information for parents * of children with asthma. Commonly prescribed asthma * medicines are all clearly described, as well as symptoms of * asthma and its causes. _Dairy-Free Cookbook_ by Jane Zukin, 1991 * _Food Allery: A Primer for People_ * by S. Allen Bock, M.D., 1988 * _Is this Your Child? Discovering and Treating Unrecognized * Allergies in Children and Adults_ * by Rapp, D. * publiushed by William Morrow & Company, Inc. New York, 1991. * ISBN #0-688-11907-7. * This is an excellent book that describes the symptoms and * treatments of food allergies/sensitivities and environmental * illness. _Make Your House Do The Housework_, by Don Aslett, 1986 * _Nutrition Guide to Food Allergies_ * by Anne Munoz-Furlong, 1992 * 24-page booklet avaialbe from Allergy and Asthma Foundation * of America for around $5.00. _One Minute Asthma: What You Need to Know__ by Thomas F. Plaut, M.D., 1992 Available in Spanish and English, this book covers the basics of childhood asthma including medications. _Peak Performance_ by Guillermo Mendoza, M.D. * Covers information about techniques for getting the most * out of your peak flow meter. _Sneezing Your Head Off? How to Live With Your Allergic Nose_ by Peter Boggs, M.D. _The Asthma Organizer_ by Nancy Sander, Debra Scherrer and Martha White, M.D. _The Asthma Self-Help Book: How to Live a Normal Life in Spite of Your Condition_ by Paul J. Hannaway, M.D., 1993 _The Best Guide to Allergy_ by A.V. Giannini, N.D. Schulz, T.T. Chang, and D.C.Wong, 1985 _The Complete Book of Allergy Control_ by Laura J. Stevens, 1983 ISBN 0-02-614450-6 * This book takes a broad view of what constiutes allergy. * Described by some as somewhat alarmist in flavor, it does * provides a thorough list of allergies and allergens as well * as detailed questionnaires to help identify allergic * reactions. _The Complete Book of Children's Allergies_ by B. Robert Feldman, M.D., 1986 * _The Food Allergy Cookbook: The Official Cookbook of the * Allergy Information Associaion_ * published by St. Martin's Press, New York. * ISBN 0-312-90185-2 * _The Food Allergy News Cookbook_ * Avaialble from The Food Allergy Network (see below under the * heading INFORMATIONAL RESOURCES...) _The Milk-Free Kitchen: Living Well without Dairy Products_ by Beth Kidder, 1991 _The Peoples's Handbook of Allergies and Allergens_ by Ruth Winter, 1984 ISBN 0-8092-5391-7 * An encyclopedia of allergy terms, allergens and their sources, * and questionnaires to help allergy sufferers identify * allergies. There is also a listing of information sources * and manufacturers of allergy and asthma related products. _Understanding Asthma: A Blueprint for Breathing_ by Sheldon Spector, M.D. and Nancy Sander produced by the American College of Asthma and Immunology * An excellent book covering all aspects of asthma. Notable * are the chapters on childhood asthma, curent treatment * aspects, and the emotional effects of living with a * chronic disease: medication side effects, and concerns * including sexuality, self-esteem, and dealing with the * "medical community". _What Everyone Needs to Know About Exercise-Induced Asthma_ by Sheldon Spector, M.D., 1992 * _What's New in Allergy_ * by Stephen Astor, MD * 3rd Edition, 1992 * published by Two A's Industries, Inc * Suite 1, 285 S. Drive * Mt. View, CA 94040-4318 * 1-415-968-3111 * When I called the number above, I got the answering service for * Dr. Astor. _Your Food Allergic Child: A Parent's Guide_ by Janet E. Meizel BOOKS FOR CHILDREN (listed alphabetically by title): * _All About Asthma_ * by William Ostrow and Vivan Ostrow, 1989 * Written by a 10-year old with asthma, focuses on how * children can learn to live a normal life with asthma. For * grades 2 - 6. _I'm A Meter Reader_ by Nancy Sander * Fun story teaches children about peak flow meters. * Available from Asthma & Allergy Network/Mother's of Asthmatics, * Inc. (AAN/MA) _So You Have Asthma Too!_ by Nancy Sander * Colorful book and video for teaching children about asthma. * Available from Asthma & Allergy Network/Mother's of Asthmatics, * Inc. (AAN/MA) * _Spiderman Battles the Myth Monster_ * Avaialble from The Asthma and Allergy Foundation of America, * A Marval comic book that focuses on the myths around asthma, * epilepsy and juvenile diabetes. _The Lion Who Had Asthma_ by Jonathan London, 1989 * Great book teaches young children about asthma and nebulizers * in a creative and colorful manner. * _Winning Over Asthma_ * by Eileen Dolan Savage, 1989 * Avaialble from The Asthma and Allergy Foundation of America, * A simple coloring book that explains about asthma through a * delightful story about five-year old Graham. CHILDREN'S RESOURCES: * Asthma Care Training for Kids (ACT) * Avaialble from The Asthma and Allergy Foundation of America. * ACT for Kids is a program designed to teach children ages * 6 - 12 how to manage their asthma. Write to AAFA for more * information. Free materials and leadership training is * available for people interested in teaching ACT. * CALM: Childhood Asthma, Learning to Manage * Avaialble from The Asthma and Allergy Foundation of America. * This program is a self paced program for teaching kids * how to manage their own asthma. There is focus on using * peak flow meters, and comes with or without a peak flow * meter. CALM bookslets are tailored for several age groups: * Pre-reader (3 - 7 years), Pre-adolescent (8 - 12 years), and * Teen (13 -19 years). * Huff and Puff (tm) * The Children's Asthma Program * A program for children ages 4 - 8 to help them learn about * asthma. Program uses games, music, play and dialogue to * teach kids how to identify, prevent and control thier asthma * symptoms. Kit includes a comprehensive program guide, * puppets, a felt-board, board game, audiocassette, colored * slides, posters and more. * - Huff and Puff and Me (tm) Workbook, $15.00 US * - Huff and Puff Music Stuff (c) audiocassette, $8.00 US * For more information call or write: * Creative Concepts, Inc. * P.O. Box 7421 * Springfield, Illinois 62791-7421 * 1-217-546-5189 INFORMATIONAL RESOURCES, ASSOCIATIONS AND SUPPORT GROUPS: * Allen & Hanburys Respiratory Institute * P.O Box 0659, * West Caldwell, NJ 07007-0659 * 1-800-843-2474 (voice activated answering service) * Provides a free booklet "A Patient's Guide to Asthma" and * free subscription to _Air Currents_ quarterly newsletter. * (see below under heading: NEWSLETTERS) Also provides boxes * for inhaler canister (MDI) recycling, and other patient * education information. Allergy and Asthma Network/Mother's of Asthmatics, Inc. 3554 Chain Bridge Road, Ste. 200 Fairfax, VA. 22030 1-703-385-4403 * 1-703-385-4404 * 1-800-878-4403 * for information, send a self addressed envelope with $.52 * postage to above address. American Academy of Allergy and Immunology 611 E. Wells St. Milwaukee, WI. 53202 1-414-272-6071 * American Allergy Association * P.O. Box 7273 * Menlo Park, CA 94026 American Celiac Society & Dietary Support Coalition 1-201-325-8837 American College of Allergy and Immunology 800 E. Northwest Highway, Ste. 1080 Palatine, IL. 60067 1-708-359-2800 1-800-842-7777 Provides brochures about asthma, and physician referral lists. * The American Lung Association * 1740 Broadway, * New York, NY 10019-4374, * USA Asthma and Allergy Foundation of America 1125 15th. Street N.W., Ste. 502 Washington, D.C. 20005 1-202-466-7643 1-800-727-8462 (1-800-7ASTHMA) * 1-800-202-466-8940 * Los Angeles Chapter * 5225 Wilshire Blvd., Suite 705 * Los Angeles, California 90036-4216 * 1-800-624-0044 * 1-213-937-7859 * - sends brochures on asthma and allergy support groups, and * will give information about the support groups in your area * - provides a couple of free brochures from the AAAI Celiac Sprue Association/USA 1-402-558-0600 * FDA - U.S. Food and Drug Administration * 1-301-443-3170 General Consumer Inquiries * 1-301-594-1012 Center for Drug Evaluation * National Asthma Education Program * National Heart, Lung and Blood Institute * National Institutes of Health * Bethesda, MD 20892 * National Institute of Allergy and Infectious Diseases * Office of Communications * Building 31, Room 7A50 * 9000 Rockville Pike * Bethesda, MD. 20892 National Jewish Center for Immunology and Respiratory Medicine 1400 Jackson Street Denver, CO. 80206 1-800-222-LUNG * A world leader in the diagnosis, treatment, and management * of asthma and other respiratory and immunological diseases. * They are involved with over 70 clinical trials, and offer a * video about the various programs available at the Center. * They have information brochures about asthma and related * topics, and they manage the National Jewish Lung Facts (tm), * and National Jewish Lung Line (tm) - two telephone programs * (listed below under heading TELEPHONE INFORMATION) offering * the latest information about current treatments, management * techniques, physiology and related topics. The Food Allergy Network 4744 Holly Avenue Fairfax, VA. 22030 1-703-691-3179 * A non-profit organization that puts out a newsletter -- * ($18.00US 6 issues/year) on food allergies and related * topics, including eczema, allergen-free recipes, medication * updates, and a dietician's column. They also sell * reasonably priced booklets and cards with information on * potentially lethal allergic reactions (anaphylaxis), * identifying potential allergens by various names on product * packaging. A sample newsletter and information sent on * request. MAGAZINE/JOURNAL ARTICLES OR ISSUES: * _Allergy & Asthma's '94 A Special Issue for Consumers_ * A special 8 page pamphlet which discusses about allergy & * asthma and the latest drugs available. * This is available FREE at every LONG drugstore or you can * write: * Reprint Editor * OTC/AA94 Healthline * 830 Menlo Avenue, Suite 100 * Menlo Park, CA 94025 * _Allergy & Asthma Magazine_ * Health Line * 830 Menlo Ave., Ste. 100 * Menlo Park, CA 94025 * Newsletter ($18.00US 6 issues/year) covers allergy and * asthma related topics including eczema, food allergies, * drug updates, news updates, a dietician's column. Sample * newsletter and information sent on request. * _Building Air Quality: A Guide for Building Owners and * Facility Managers_, * published by the U.S. Government Printing Office, 1991 * Document Number: S/N 055-000-00397-4 * 245 pgs., $24.00US * 1-202-512-1800 _CHEST_ June, 1992 Journal for medical specialists. This issue is totally devoted to asthma diagnosis, treatment and management. _Consumer Reports_, Oct 1992, Reviews of air purifiers. _Consumer Reports_, Feb 1993, Reviews of vacuum cleaners. * _Respiratory Health Effects of Passive Smoking: Lung Cancer and * Other Disorders_ * published by the U.S. Government Printing Office, 1993 * Document Number: S/N 055-000-00407-2 * 544 pgs., $29.00US * 1-202-512-1800 * This document contains a section on asthma in children. * _The Inside Story: A Guide to Indoor Air Quality_ * Publication # EPA/400/1-88/004 * available from: U. S. Environmental Protection Agency * Public Informaton Agency * 401 M Street SW * Washington, D.C. 20460 * Office of Air And Radiation NET RESOURCES: alt.support.asthma alt.support.non-smoker alt.med.allergy rec.food.veg -- Info regarding milk-free, egg-free recipes. misc.consumers.house -- * - misc.consumers.house archive on central vacuum cleaners, * available by electronic mail. Send a message to * house-archive@dg-rtp.dg.com with "send vacuums" in the body * to receive the archive. - info is also available on air filters, and other household products. * misc.kids -- Great FAQ on Children, Allergies and Asthma, with very good information about food allergies and resources for foods and recipes. Asthma/Allergies Mailing List: To join, send mail to asthma-request@infopro.com. Post by sending mail to asthma@infopro.com * ftp/Gopher faq archives at sunSITE.unc.edu in: * pub/academic/medicine/alternative-healthcare/faqs * This site contains medical information including this * Reading/Resource List NEWSLETTERS: _Air Currents_ published by Allen & Hanburys Respiratory Institute write for a FREE subscription: P.O Box 0659, West Caldwell, NJ 07007-0659 1-800-843-2474 * _Asthma Update: A Newsletter for People with Asthma_ * The latest on drugs and treatments. * 1-410-267-8329 $10US per year _LungLine Letter_ published by The National Jewish Center for Immunology and Respiratory Medicine write for a FREE subscription: 1400 Jackson Street, Denver, CO 80206 * _The MA (Mothers of Asthmatics) Report_ * published by the Allergy and Asthma Network/Mothers of * Asthmatics, Inc. * 1-800-878-4403, $25 per year. * _Respiratory Health Monitor_ * published by Data Centrum Comminications, Inc. * 110 Greene Street * New York, New York 10012 * Subscription Rates: US $3.95 per year * Canada/Foreign $7.95 per year PRODUCTS/MAIL-ORDER INFORMATION FOR PEOPLE WITH ASTHMA: * -Allergy Clean Environments * 501 Station Avenue * Haddon Heights, NJ 08035 * 1-800-882-4110 * 1-609-546-1101 * 1-609-546-1466 (FAX) * This company sells vinyl lined dust mite covers, masks, * mildew remover, air filters and cleaners, vacuums, * and books. -Allergy and Asthma Network/Mother's of Asthmatics, Inc. 1-800-878-4403 Offers Membership information, books, videos, peak flow meters, holding chambers/spacers, nebulizer accessories. -Allergy and Asthma Products Company 1-800-221-6483 A guide to dust and mold management and asthma control, and some allergy/asthma management products including filters, bedding, mold and dust mite inhibiting sprays, and masks. -Allergy Control Products 1-800-422-3878 * 1-203-438-9580 * 1-203-431-8963 (FAX) Catalog features air filters, asthma supplies, and *bedding supplies for people suffering from dust mite allergies. They offer an informative pamphlet, "Understanding Vacuum Cleaners, Vacuum Exhaust and Allergen Containment". (*these covers are not lined with vinyl but rather a vapour-permeable membrane that does not allow allergens to pass through -- much more comfortable than vinyl.) -The AL-R-G Shoppe, Inc. 1-305-981-9182 Catalog containing hyper-allergenic cosmetics, jewelry, plus the usual filters and bedding such as mattress and pillowencasings. -Allergy Relief Shop 2932 Middlebrook Pike Knoxville, TN 37921 1-615-522-2795 * -Allergy Supply Company * 11994 Star Court * Herndon, VA 22071 * 1-800-323-6744 * 1-703-391-2011 * 1-703-391-2014 (FAX) * Catalog contains *everything* for people with allergies or * asthma. Notable are the percussers, inspiratory muscle * trainers, dust mite and mold preventives, hygrometers, * along with the standard mattress encasings, vacuums, and * air filter systems. There are tips on every page for * managing your environment. Some include: * - Place tape over mattress and pillow cover zippers for * added protection * - Inhibit mold growth by keeping room humidity BELOW * 40%. * Control dust mites by keeping room temperature BELOW * 70 degrees and room humidity BELOW 50%. -Bio-Tech Systems * P.O. Box 18398 * Chicago, IL 60618 * 1-800-621-5545 * 1-312-465-7619 (FAX) Catalog containing information and products related to dust and mold allergies, and asthma. Filters, masks, mattress and pillow covers, mold preventives, nebulizers and other equipment. -Creative Concepts, Inc. P.O. Box 7421 Springfield, Illinois 62791-7421 1-217-546-5189 (See above under heading CHILDREN'S RESOURCES) -Fisons 1-800-621-5545 -Heathdyne Technologies 1-800-421-8754 -Healthscan 908 Pompton Avenue Cedar Grove, New Jersey 07009-1292 1-800-962-1266 Catalog includes health care equipment including peak flow meters by Assess (TM), and spacers including the new-ish OptiHaler (TM). They also provide FREE 12-week peak flow value charts. * Medic Alert Foundation * 2323 Colorado Avenue * P.O. Box 1009 * Turlock, CA 95381-1009 * 1-800-432-5378 * 1-209-668-3333 * A non-profit organization which provides personal medical * information in emergencies. The foundation provides a * Medic Alert ID in the form of a bracelet or necklace * (there are also a few other forms of IDs), which medical * personnel will look for in an emergency if you are * unconscious. On the bracelet is engraved a few brief * facts such as "Asthma. Allergic to Penicillan. Contact * Lenses." and a number which they may call collect to get * more information, such as emergency contact numbers, * medications, etc. * The Medic Alert ID itself will cost you around $35 for * the stainless steel version (more for gold-plated, etc.), * but beyond that there is no fee, although they do ask * for contributions, since it is a non-profit organization. * There are some imitators out there, who do it for profit, * but Medic Alert is the most widely recognized and respected * organization that does this sort of thing. * -National Allergy Supply * 4400 Georgia Hwy. 120 * Post Office Box 1658 * Duluth, Georgia 30136 * 1-800-522-1448 * 1-404-623-8077 * 1-404-623-5568 (FAX) * This company sells vinyl lined dust mite covers, masks, * air filters and cleaners, vacuums, peak flow meters, etc. TELEPHONE INFORMATION: The 24-hour _National Jewish Lung Line_ (TM) 1-800-222-LUNG Staffed by specially trained nurses from the National Jewish Hospital in Denver, Colorado. The staff can answer questions about the latest treatments and asthma management techniques but should NOT be used in emergency situations, but should be used as an educational resource. The 24-hour _National Jewish Lung Facts_ (TM) - 1-800-552-LUNG Pre-recorded information on respiratory and immunological diseases and programs available at NJC. Marion Merril Dow Pollen Hotline 1-800-POLLENS * EPA Public Information Center * 1-202-382-2080 VIDEOS: * Asthma Super Stars * Geared toward children, and designed to help children gain a * sense of hope and mastery over their asthma. * Available from The Asthma and Allergy Foundation of America. * Asthma: What You Need to Know * Asthma basics for families and schools. * Available from The Asthma and Allergy Foundation of America. * and Allergy and Asthma Network/Mother's of Asthmatics, Inc. * The Jeanette Bolden Story * An inspirational real life story about a young woman with * asthma who goes on to win a 1984 Olympic Gold Medal in * Track. * Available from The Asthma and Allergy Foundation of America. ****************************************************************** Constructive comments, additions and corrections to this list are welcome. Please send them via E-mail to roxxie@delphi.com.