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Dissertation Information for Timothy P. Hogan

NAME:
- Timothy P. Hogan

DEGREE:
- Ph.D.

DISCIPLINE:
- Library and Information Science

SCHOOL:
- University of Illinois, Urbana-Champaign (USA) (2007)

ADVISORS:
- Carole L. Palmer

COMMITTEE MEMBERS:
- Linda C. Smith
- Susan Gray Davis
- Dale E. Brashers

MPACT Status: Fully Complete

Title: Information and the management of treatment in chronic illness: A qualitative study of people living with HIV-disease

Abstract: Managing treatment for chronic health conditions is an ongoing process that involves a variety of resources and activities, many of which are information-based. Although numerous studies have examined either the role of treatment regimens or the role of information in the lives of the ill, few studies have examined these two aspects of the illness experience in relation to one another. This study is an exploration of the information sources and activities associated with the management of treatment for HIV/AIDS, a condition that, over the last two and a half decades, has shifted from acute to chronic status in the United States.

Holding that the work involved in managing chronic illness is performed mostly beyond the confines of the health care system, in people's homes, this investigation foregrounds the perspective of the ill individual and accentuates salient elements of everyday life. In line with the naturalistic paradigm of inquiry, I visited the homes of 26 HIV-positive women and men and met with an additional seven participants (N=33) in another location of their choosing, conducted in-depth interviews, gathered artifacts, and observed how they treat their condition and use treatment-related information.

Transcripts from the in-depth interviews were coded to identify patterns relevant to the project research questions, and other artifacts collected or generated during fieldwork were used as supplementary evidence. Analysis revealed that participants rely extensively on health care providers and other individuals living with illness as sources of information and conduits for learning about their treatment regimens. Other information sources and activities tied closely to the individual and their surrounding personal environment, including past experience and bodily sensations, trial and error work, and the creation and maintenance of routines are also important, particularly when searching for ways to meaningfully integrate a new or altered treatment regimen into daily life. Finally, beyond gathering and using treatment-related information, participants also described making dedicated efforts to control the access that other people have to information regarding their treatment of HIV/AIDS. The implications of these findings for existing conceptualizations of health information, information seeking and use, and models of chronic illness management are examined.

MPACT Scores for Timothy P. Hogan

A = 0
C = 0
A+C = 0
T = 0
G = 0
W = 0
TD = 0
TA = 0
calculated 2009-06-03 20:27:54

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Students under Timothy P. Hogan

ADVISEES:
- None

COMMITTEESHIPS:
- None